When Lex Stolle was 10 years old, he started behaving in ways that weren’t like the energetic pre-teen.
“There were a lot of things that just weren’t right, like I wasn’t eating well. I was losing a lot of weight; I had fluid in my lungs. There were just so many problems that ultimately did lead to my diagnosis,” he said referring to high risk acute lymphoblastic leukemia, or ALS.
The medical team initially told Stolle’s family that there would be three and a half years of intense chemotherapy. At that time, they didn’t have a complete diagnosis.
“Additionally, I would have 10 months of going in every week, taking lots of shots and pills,” he said. “And then if I ever had a fever, I would have to stay in the hospital for days, weeks or even months.”
However, updated research allowed Stolle to have a year cut off his chemotherapy.
“In total, I took over 2,000 chemotherapy pills. I had about 36 spinal taps, which is where they stick a needle in my spine to send chemo to my brain. …I spent over 50 nights in the hospital. I missed 163 days of school and my fifth-grade year,” he lamented — but doesn’t feel sorry for himself.
Ask him how he’s doing now.
“I’m awesome! I finished treatment in January of 2022. I’m a year and a half out of treatment and I’m feeling a lot better. I still go in every few months, and then I’ll have to go in every year for, I think, the rest of my life,” he said. “And I’ve started to get back into the shape that I was in — but it’s still hard to be a teenager.”
Paying the blessings forward
Stolle’s cancer journey began in 2019. Now at 14 years old, he wants to do what he can to keep the deadly disease from other kids.
“I have always had a passion for helping others, and especially with my cancer, I know what it’s like to be put through everything I went through. I don’t want any kid to have to suffer, let alone someone younger,” he said. “So I decided to do this project last year just for Peachtree Corners.”
He’s talking about his brainchild, Cancer Cards.
“Seeing so many kids go through what I did really got to me, and I felt the urge to make a difference. That’s how the idea for Cancer Cards came about. …They’re about the size of a credit card and they hold special discounts (between 15% off meals to free appetizers) for 9 to 12 local businesses.”
This year, he’s gone beyond Peachtree Corners to include cards exclusive to Milton/Alpharetta, Marietta, Buckhead and Athens. The cards are $25 each and the money raised goes to the Aflac Cancer and Blood Disorders Center at Children’s Healthcare of Atlanta — the same place where Stolle received his treatment.
“We are so proud and honored to have Lex Stolle’s support of the Aflac Cancer and Blood Disorders Center of Children’s Healthcare of Atlanta,” said Lydia Stinson of Children’s Healthcare of Atlanta Foundation. “After three long years of undergoing chemotherapy treatment, Lex was inspired to give back to help kids like him, and he has been determined to give back to Children’s in so many ways.”
The lengths that Children’s Healthcare of Atlanta went to keep his spirits up — therapy dogs, clowns, etc. — made many of his worse days some of his best, Stolle said.
“I raised around $500 last year, but this year, I’m hoping to raise a little over $90,000,” he added.
Stolle hopes the funds can help wipe out childhood cancers. “I want one day for my grandkids to not even have to think about getting cancer, or if they do get cancer, that it can be a very easy treatment,” he said.
Cancer cards are on sale now and are active through May 25, 2024. They can be purchased online at cancercard.net.